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The Center for Bioethics & Human Dignity Applauds House Approval of
the “Genetic Information Nondiscrimination Act of 2007”
April 26, 2007 – Chicago,
Illinois – The Center for Bioethics &
Human Dignity (CBHD) applauds the overwhelming House approval of
H.R. 493, the Genetic Information Nondiscrimination Act of 2007
(GINA) that offers basic genetic privacy rights and prohibits
genetic discrimination.
While this approval is welcomed, this bill serves as a reminder of
how research so frequently outpaces ethical considerations and
legislative safeguards. That this bill comes a full four years after
the completion of the sequencing of the entire human genetic code in
April 2003 is testimony to this concern. Given the specific budget
allocations and concerted reflection to address the ethical, legal
and social issues of the Human Genome Project, it is absolutely
stunning that seventeen years after the mapping of the human genome
was first initiated we do not yet have meaningful federal
legislation to protect genetic privacy and make it illegal to
discriminate on the basis of genetics.
In
response to the House approval of GINA, Director of the Center for
Bioethics & Human Dignity C. Ben Mitchell, Ph.D., comments, “While
the Genetic Information Nondiscrimination Act is certainly no
panacea, it is a good start. Protection against the misuse of
genetic information will require our utmost diligence.”
To
ensure protection against the misuse of genetic information, CBHD
urges swift passage of this legislation by the Senate and calls on
the President to sign GINA into law as soon as possible.
CBHD
About The Center for
Bioethics & Human Dignity
The Center for Bioethics & Human
Dignity is dedicated to
exploring the nexus of biomedicine, biotechnology, and our common
humanity. The Center exists to equip thought leaders to engage the
issues of bioethics using the tools of rigorous research, conceptual
analysis, charitable critique, leading-edge publication, and
effective teaching.
Contact:
For Interviews with CBHD
Director C. Ben Mitchell, Ph.D., or Other Center Personnel:
Danielle Morrow 847-345-7248 or
media@cbhd.org
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