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End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities

American Association on Intellectual and Developmental Disabilities
Place of Publication: 
Washington, DC

This unique reference by a physician and medical sociologist is the only resource to addresses in-depth the medical, social, legal, and ethical issues in end-of-life care that people with intellectual and developmental disabilities face from youth to old age. End-of-Life Care contains 20 chapters from leading experts that cover issues from ethics and law and pain management to coping with grief and bereavement in the context of the lives of children and adults with developmental disabilities. The book is a must-have resource for physicians, providers, social workers, individuals, and caregivers to get a complete understanding of the various issues faced by people with disabilities who are facing death and/or are dying.  Here's how you benefit from End-of-Life Care:

* Analyze the construction of a 'Good Death'
* Learn historical and foundational materials to end-of-life care for children and adults with intellectual developmental disabilities
* Understand how to anticipate upcoming needs of patients and how to secure resources to assist them for successful planning at the end-of-life
* Gain perspectives from a diverse group of authors including practicing physicians, medical ethicist, attorneys, sociologists, and gerontologists
* Learn about treatment options, ethical dilemmas and legal issues, and see the impact on families and caregivers
* Recognize the social, emotional, and spiritual needs of the patients, their families, and caregivers
* Read guidelines for making decisions that are thoughtful, respectful, and ethical
* Understand the importance of involving all relevant stakeholders in making of end-of-life decisions
* Identify the challenge of providing nutritional support at the end-of-life
* Discover comprehensive palliative care strategies and treatment options for children and adults in a solemn, but warm and respectful manner
* Obtain important health-related information on the complexity of issues involved in caring for people with disabilities who are dying

Since 1876, the American Association on Intellectual and Developmental Disabilities (AAIDD) has been providing worldwide leadership in the field of disabilities. AAIDD is the oldest and largest interdisciplinary organization of professionals and citizens concerned about intellectual and developmental disabilities.

AAIDD publishes books for professionals in developmental disability in the areas of:

-Supported living
-Definition of intellectual disability
-Disability funding
-Positive behavior support
-Palliative care
-Quality of life